Skip to content

Category: disability

On chronic illness (and other disabilities) as perceived imposition

We have this ideal, in American society, of a “low maintenance” person, and I get the sense that the ideal is especially important for women to meet. We should be easygoing. We should not complain, and whatever is offered to us should be enough, should be accepted with gratitude. We must never impose on others. Taken to its logical conclusion, it also means suffering should be done in silence.

Continue reading On chronic illness (and other disabilities) as perceived imposition

Chronic illness: wrecking all your plans

I’m a good project planner, great with logistics. I had backup plans for my backup plans. But I also had a chronic illness to contend with, and the one place where I should have known to build in extra leeway—the parts involving physical labor and the ability to sleep soundly in adverse conditions—were the parts where everything went sideways. And, oddly, they were the parts for which I’d done the least contingency planning.

Continue reading Chronic illness: wrecking all your plans

Invisible disabilities and healing

Honestly, at the beginning of November, I wasn’t feeling that thankful. I was (unbeknownst to myself at the time, and knock on wood in the hopes that it’s really true) at the end of a very, very bad year, which started with an unexplained pain in my left foot beginning last fall and went through a series of stages, from hip pain starting sometime before ALA Midwinter, through [what should have been] a minor thumb injury that ended up costing me a lot of the use of my dominant hand for several months. There was some other pain in other places in there, too. There was a significant period where, between the hand and the hip (and maybe the shoulder?), even getting dressed was a challenge for me.

Continue reading Invisible disabilities and healing